The ‘omfg’ stage…

And wouldn’t you know it…5 days prior to my departure, CCSVI, the ‘Costa Rica option’, and Passport Medical have been mired with the saddest possible outcome to the same frantic desperation with which I am seeking endovascular therapy; Mahir Mostic, a pwMS whose case could not have been all that different from mine, has died due to complications from what is misinformatively being referred to as ‘The Liberation Treatment’. It’s sad. And while details are emerging on where the disjunct occurred, on what went wrong, at what level and why, I am sure, sure as I’ve ever been of anything, Mr. Mostic’s death was not entirely in vain.

Any that have been following my blogs may remember one titled ‘Balloon Party‘  where I expressed concerns over some of the same things that played into this tragic story; follow-up care, getting better only to get worse, and what my reaction would be. If faced with the same circumstances, would my decision be any different? Would I book the next flight I could back to Costa Rica and open discussions about stenting my blockage?

I voiced a rather aggressive stance on that question… but much like many things in life, what’s written on paper and what occurs in practice are often two very different things. While I would like to think that I will hold fastidiously to what I had previously stated, the sad truth – I have no idea. I have no idea how I would handle getting better only to get worse.

Life and death… complete opposites. But what they have in common; they can both be cruel and unusually unfair. I have done my due diligence. I have a doctor that has agreed to provide follow-up care. I know there is a imaging facility in Montreal that is capable of doing a Doppler/MRV/venogram, should I need it. I know Dr. Sandy McDonald in Barrie is trying to help as many people as he can. But if/when I experience complications/restenosis, will I have the strength to avoid making the same mistake?

I guess we’ll find out… I leave on Wednesday. Wish me luck… I will most certainly be doing my best to keep everyone up-to-date through further blog posts as time allows.

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3 thoughts on “The ‘omfg’ stage…

  1. Ruth says:

    dearest Andrew..our thoughts and heart are with you and our very fervent prayers.
    Vaya con dios, Andrew,you are a beautiful, brilliant, strong young man.
    I will be following your blog and we fly with you in our dreams:)
    You will be okay, sweetie.
    Maybe get them to just use the larger ballons and no stents.
    All the very best.
    warm hugs from Ruth-Ann and Dan

  2. Laura M says:

    Hey Andrew,
    crazy that you’re only a few days away from your trip. It arrived so fast. Reading your blog is making me feel your fears with you. I can’t really explain it. But I know that there are so many people who will be thinking of you and sending you “pura buena onda” (purely good vibes) as they say in latin america. I’m wishing you all the best and sending loads of love & support from (soon to be) afar. Update us when you can. Hope to hear from you soon with great news.

    Laura xoxo

  3. Angela Lemme says:

    Andrew,
    Just wanted to let you know that I am thinking of you. Sending you some Calgary love and positive energy 🙂

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