Insanity vs. Inanity

This is just ludicrous. I didn’t even realize the amount of stuff I was polluting my body with. I worked so hard to remain as objective as possible through–everything–that I stopped caring about being poked and prodded and just started to think of my body as a (broken) machine and was a compliant patient. Through it all. Now I find myself no longer beholden to Big Pharma. For now; the truth is, at the moment, there is nothing to modify the natural course of this disease. My disease. Realistically, I will likely need to resume treatment. But not tomorrow… Insanity meets inanity in this post!

 

I would like for all to know that while my information is accurate, I am in no way a medical professional. Further, MS as it was just covered is specific to me—we all have our own unique biochemical footprint.

My name is Andrew Durso, I am 30 years old. In 2007, I was diagnosed with a chronic, lifelong illness—Multiple Sclerosis (MS). I was counseled by my Neurologist to choose between 4 medications— Copaxone, Rebif, Avonex, and Betaseron (the only available first-options at the time, known as the C.R.A.B. drugs). What did I know of such things? My decision was thus based entirely on the method of administration and my relative comfort level with injecting myself. Thus, my options became: a subcutaneous injection (known as ‘SQ’, frequently referred to as ‘Sub-Q’, or under the skin) every day (Copaxone), a different Sub-Q injection 3 times a week,  an intramuscular (IM) injection once a week (Avonex), or a a subcutaneous (SQ) injection every other day (Betaseron).

I settled on Rebif. My disease progressed quickly. Within 8 months of my diagnosis, I was confined to a wheelchair. Six treatments and two surgeries later, the most incredible thing happened to me.

As of March 1, 2013, I have not consumed a single pharmaceutical product. I have instead been medicating exclusively with Medical Cannabis. I purchased a battery operated, portable vaporizer to facilitate consumption. I asked for and received a medical exemption to purchase, carry, and possess marijuana.

Please understand–I have a great job. I have an amazing family. I thought my days with pot were behind me. But this is no longer high school. It is a FACT that I am enjoying good health right now. Understand: I don’t want to get high. I’m sick and need to medicate.

I now consume Medical Cannabis for all that stuff that I was taking those 20 pills a day for. And, for me, it works.

 

 

Medcation History:

Prescribed:

-Baclofen – 10 mg tablrets 4 times daily (to control spasms, medical cannabis achieves the same effect)

-=Clonazepamn – 0.5mg pill 2 times daily (for tremor control – medical cannabis achieves the same effect)

Detrol L.A. – 4 mg capsule 2 times daily (to calm my overactive bladder muscles – medical cannabis achieves the same effect)

Treatments:

Rebif – 44mcg injected 3 times weekly (interferon 1a)

Tysabri – infused in a infusion centre. Dosage is based on weight, every 4 weeks

Mitoxantrone – chemotherapy1 agent used primarily to treat leukemia, 1.5L infused at hospital every 4 weeks.

Cyclophosphamide – chemotherapy1 agent used to treat various Cancers, 1.25 infused every 4 weeks for 3 years with future regimen of ever 8 weeks.

-Current intent is to resume Tysabri.

Surgeries:

-CCSVI venoplasty

-Open brain surgery and installation of Neurostimulator for tremor control

Over-the-counter (OTC):

3.1,000 IU Vitamin D twice daily

4.350 mg of Calcium Citrate or 500 mg of Calcium Carbonate twice daily

7.1 horse-pill sized multivitamin

8.Omega-3-6-9 capsules (containing 400 mg of EPA and 200 mg of DHA thrice daily

 

1                   Chemotherapy always indicated or use with steroids (1L of Solu-Medrol delivered via infusion and unknown quantity of Zofran (anti-nausea drug delivered via infusion.

Andrew Durso
Vice President
Tristan Williams MS Foundation (TWMSF)

Resources:

Neurology-2003-Goodin-1, obtained from http://www.neurology.org/content/61/10/1332.full.pdf‎
MS Society of Canada_ available at http://www.mssoiety.ca

 

 

 

 

 

 

 

 

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4 thoughts on “Insanity vs. Inanity

  1. Maria Gabriel, Ms. says:

    Hi Andrew,

    Why the need to justify the use of alternative medicine? Several of your blogs refer to that. Just wondering……

    In any case, as always it is an interesting read. Hugs, A. Maria xoxo

  2. wakingseconds says:

    I was gently reminded yersterday that not everyone agrees withe and that children may be reading it  (This is apparently my responsibility to not write about my  successes–because its not my blog)

    Andrew Durso Vice President Tristan Williams MS Foundation  http://www.twmsf.com

    Follow my everyday battles™ at http://www.wakingseonds.com

  3. Margie says:

    As you state, you are not a medical doctor AND the diagnostic blueprint is specific to you; as would be the success or failure of any treatment followed. I am not a big fan of drugs (prescribed or otherwsie) but I do recognize that sometimes this is the only way to treat, prevent or cure what ails us.

    • wakingseconds says:

      I don’t llikle drugs either, Auntie–and while I am not a medical Doctor, my current treatment plan is working for me. I am no longer phased by what time of day it is nor how much i have already done, while keeping a reserve of energy to tackle the reast of the day–example: I had a 10 am appointment this morning. As it would happen, I had a ‘mishap’ (catheter failure)–completely my fault= Can’t you recall a time when you were ushered into an appointment?) I was able to, with Dr. Giacomini’s assistance, to finagle my way jinto the horribly inaccessible washroom, assist him as I removed my pants boxers, changed, xfered again to my chair, then called transport foir my ride. It was then I discovered that my return trip had been ancelled by someone other than me. I had no choice but to spring for a cab, which cost me $15 + tworansfers. I’m now home, able to think clearly enough to respond to you—with 14 unread messages in the pipe.

      As I said, I don’t like drugs either. Weed is just a word. Like dope. Or Pot. Or Baclofen. Or clonazepam. Or Tysabri. I refer to it as cannabis) but, all things being equal, this is but another word.

      I am fully awareb that you amongst others do not and have never chosen to take even OTCN meds. But, there is no denying that the majority of people do. I would sooner see my sisters give up smoking.

      Thanks for your e-mail! Love you!

      -Andrew

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